About the Registry
Mission
The Post-Joint Embolisation Osteoarthritis Registry is a global, patient-centered research initiative designed to track outcomes after joint embolisation procedures. Our goal is to build the largest database of patient-reported outcomes to improve understanding of treatment effectiveness and help guide clinical decision-making.
Why Participate?
- Contribute to cutting-edge medical research
- Help future patients make informed treatment decisions
- Track your own progress with validated outcome measures
- Connect with a community of patients with similar experiences
- Support the development of evidence-based treatment guidelines
Patient-Reported Outcomes
We collect validated outcome measures including:
24-item questionnaire measuring pain, stiffness, and physical function
Quality of life measure across 5 dimensions of health
Visual analogue scale for pain intensity (0-10)
Overall assessment of treatment effectiveness
Privacy & Security
- All patient data is completely anonymous
- No personally identifiable health information (PHI) is collected
- Data is encrypted at rest and in transit
- GDPR compliant
- Email addresses (if provided) are hashed and only used for follow-up reminders
- You can request data deletion at any time
Technical Architecture
This registry is built on Cloudflare's edge platform for maximum security, scalability, and global availability:
- Cloudflare Workers for API endpoints
- Cloudflare D1 for structured data storage
- Cloudflare Pages for static frontend hosting
- End-to-end encryption
- Bot protection with Turnstile
Contact
For questions, concerns, or to request data deletion, please contact: registry@example.com
Research Use
Data from this registry may be used for research publications, presentations, and clinical guidelines. All published data will be aggregated and completely anonymous. Individual patient data will never be identifiable.